Rare skin disease disfigures baby's face, mother reacts to hateful comments.

No one imagined the child's illness before giving birth.

Rebecca Callaghan's birth was rather difficult, it seemed that something fluid enveloped the fetus and so the times were anticipated. No one suspected of a disease and when sweet Matilda was born, the doctors noticed a showy blue spot on the little girl's face which they labeled as a "wants".

In fact, further investigation revealed that Matilda had Sturge-Weber syndrome. A disease that could cause severe symptoms such as epilepsy, learning difficulties and walking difficulties. Her parents were really worried about losing her.

The little girl gets worse so quickly that the dad comments in an interview with Daily Mail:

We couldn't travel with her because she was too sick. We were so excited for our baby to arrive and now we don't even know if he will survive.

What's more, Matilda has manifested heart problems. In the meantime, the little girl started a very complex laser therapy which left her skin completely red. This therapy to remove the birthmark on the face could last up to 16 years.

Laser treatments are indeed long and painful but Matilda reacts positively and seems to be a happy child, what is not easy at all is listening to people's comments.

Whenever Matilda is out for a walk, there is always someone ready to judge her appearance, even to question the fact that parents are good parents. To which the father adds:

They only see what is in front of them and jump to painful conclusions. I wish they could see beyond the birthmark and realize what a wonderful little angel our daughter is.

Unfortunately, the disease worsens the child's health and now Matilde is almost blind and uses a walker to walk. Her parents comment that despite everything Matilda remains a joyful child and that she has a smile for everyone.

In 2019 Matilda turned 11 and photos with her in a wheelchair were published and thanks to these shots many generous people contributed to the purchase of a new wheelchair. Matilda, she will go back to doing the thing she likes best, going outdoors and staying away from the crowds.