Ua hānau ʻia ʻo ia me kahi maʻi ʻokoʻa a ʻike ʻole ʻia akā ʻaʻole i pau ka manaʻoʻiʻo i ke kōkua a ke Akua.

Late 90s, Illinois, USA. He mau makua ʻōpio ʻo Mary lāua ʻo Brad Kish e kali nei me ka hopohopo a me ka hauʻoli i ka hānau ʻana o kā lāua keiki. Ua hoʻomau ka hāpai ʻana me ka pilikia ʻole akā i ka lā hānau, i ka wā i hānau ai ka pēpē, ua ʻike koke nā kauka ua hewa kekahi mea iā ia.

Michelle he helehelena poepoe kona, he ihu nuku, a he lauoho lauoho. Ma hope o ka noiʻi ʻana, ua hoʻoholo nā kauka i ka pilikia o Michelle ʻO ka maʻi maʻi Hallerman-Streiff.

ʻO ka loaʻa ʻana o ka maʻi Hallermann-Streiff

Hoʻokahi kēia maʻi maʻi ka maʻi maʻi ʻano laʻe pili i ka iwi poo, ka maka a me ka maka. Hōʻike ʻia ia e ka hui pū ʻana o ka craniofacial abnormalities, ka ulu ʻana o ka ulu ʻana, ka cataract congenital, ka hypotonia muscle, a me nā mea ʻino ʻē aʻe. Ma nā mea a pau, ʻo nā hōʻailona e ʻike iā ia he 28 a ʻo Michelle he 26.

Al Halema'i hoomanao o na keiki, kahi i hānau ai ʻo Michelle, ʻaʻohe kanaka i ʻike i kēia maʻi. Ua ʻike ʻo Mary i ka maʻi maʻi, hāʻule i ke kaumaha. ʻAʻohe ona manaʻo i ka mea e manaʻo ai a ʻaʻole maopopo iā ia pehea e hoʻoponopono ai i ke kūlana.

Ma waho aʻe o ka maʻi maʻi, ua maʻi ʻo Michelle liʻiliʻi dwarfism. ʻO ia ka mea e pono ai ʻo ia i ka mālama a me ke kōkua nui, mai nā noho huila uila, nā mea hoʻolohe, ka respirator a me nā mea ʻike.

Akā ʻaʻole i manaʻo nā mākua a me Michelle liʻiliʻi e haʻalele. Ua loaʻa iā lākou nā ala e hoʻoponopono ai i ke kūlana a i kēia lā iā Michelle Nā makahiki 20 He kanaka hauʻoli ʻo ia, makemake ʻo ia e kaʻana like i ka manawa me kona kaikuahine a me nā moeʻuhane o kahi hoaaloha.

ʻOiai ke kiʻekiʻe a me kona kūlana, ola ʻo ia e like me ke kanaka maʻamau, akamai, akamai, ʻaʻole manaʻo e kuhi hewa ʻo ia he kaikamahine liʻiliʻi. ʻO Michelle aloha i ke ola a he aʻo ia no ka poʻe a pau i haki i ka pilikia iki a i ʻole ka manaʻo he mea pono ke ola.