ʻIke ke keiki me ka dystrophy i kāna moeʻuhane e lilo i mahiʻai
ʻO kēia ka moʻolelo o ka mea liʻiliʻi John, he keiki i hānau ʻia me ka muscular dystrophy me ka liʻiliʻi o ke ola.
La muscular dystrophy he ma'i ma'i weliweli ia e pili ana i na i'o a e ne'e ana. ʻO ka mea pōʻino, a hiki i kēia lā, ʻaʻohe lāʻau lapaʻau, ʻo ia hoʻi he lāʻau e hiki ke hoʻōla i ka maʻi. Hiki i nā maʻi ke hilinaʻi wale i nā hōʻailona hōʻailona, hiki ke hoʻomaha i nā hōʻailona. ʻO ka manaʻolana ola he 27/30 mau makahiki, akā i kekahi mau manawa hiki ke hiki i 40/50.
Mai ka wā kamaliʻi, ua hauʻoli ʻo John i ka hahai ʻana i kona makuakāne i kāna mau hana mahiʻai, manuahi, pili me ke ʻano. I ka hala ʻana o ka manawa, ʻike nā mākua i ka ulu ʻana o ka makemake nui o kā lāua keiki e hahai i nā wāwae o kona makuakāne. Ua komo ʻo ia i nā ʻano hana mahiʻai a pau, ʻoiai aia ma ka noho huila.
Akā ʻo ka huli ʻana no John ke hiki mai i ka wā i ʻike ai kona makuakāne, e nānā ana i kahi hoʻolaha hahai holoholona, ua ʻike i kahi ʻano noho huila hahai. ʻOiai ko lākou makemake e hoʻokō i ka moeʻuhane o kā lāua keiki, ʻoi aku ka pipiʻi o ka noho no ka ʻohana.
Hoʻokō ʻia ka moeʻuhane a John i ka noho kolo
ʻO ka mea pōmaikaʻi i kekahi lā, ua loaʻa i ka makuakāne kahi lima lua, kūʻai mai a hoʻomaka e hana i nā hoʻololi e pono ai. Eia kekahi laʻana, ua hoʻohuiʻo ia i kahi'āpana lāʻau nui i mua, i hiki ke hoʻokuʻu i ka hānai no nā bipi.
A Nā makahiki 12 Mahalo i kona noho kolo kūikawā, ua lilo ʻo John i mea mahiʻai liʻiliʻi. Hiki iā ia ke kanu i ka ʻuala, hoʻihoʻi i ka palaoa i loko o ka pā hale, hānai i nā holoholona. ʻAʻohe mea hiki ʻole i kēia manawa no John liʻiliʻi.
ʻO ka makuahine haʻaheo o kāna keiki, i hoʻopuka ʻia ma nā pūnaewele a wikiō e hōʻike ana i kāna keiki haʻaheo ma ka hana. Ua hōʻike ʻo John, ke keiki me ke ola ʻole, i ka ʻohana a me mākou a pau me ka hoʻomanawanui ʻaʻohe mea hiki ʻole ke hana.