Pehea e loaʻa ai ke keiki me ka maʻi maʻi o ka maʻi hoʻololi i ka ola o kahi kanaka

Ua ʻōlelo ʻo Cormac Neeson ka mea hoʻokani pōhaku ʻĀkau ʻIrani e loaʻa ka pēpē me Down Syndrome i hoʻololi i kona ola ma ke ʻano "hauʻoli a maikaʻi".

I ka makahiki 2014 e noho ana ʻo Neeson i ka moemoeā o ka pōhaku 'roll' i nā ʻano he nui. Ua kūʻai aku kāna hui, ʻO ka pane, i nā haneli he haneli o nā moʻolelo a mākaʻikaʻi i ka honua me nā makemake o The Rolling Stones, The Who and AC / DC.

Akā ua hoʻoluliluli ʻia ka honua o ka mea mele i ke kumu i ka wā i hānau ai kāna wahine ʻo Louise i kahi pēpē premature i loko o 27 mau pule wale nō.

"He manawa pouli a pīhoihoi hoʻi ia," wahi a Neeson.

ʻO kā lāua keikikāne, ʻo Dabhog, hānau ʻia me ke kaupaona o 0,8 kg a ua mālama nui ʻia. Ua noho ʻo ia i ka haukapila ma Belfast no ʻehā mau mahina.

"No ka hapa nui o kēlā manawa ʻaʻole maopopo iā mākou i kēlā me kēia lā ke hele ʻo ia e hana," wahi a Neeson.

I ʻelua mau pule ma hope mai, ua alo lāua i ka nūhou e loaʻa ana ʻo Dabhog i Down Syndrome, kahi ʻano kūlohelohe e pili pinepine i ka hiki ke aʻo i ke kanaka.

"He mea ʻē aʻe wale nō ia i hoʻohui wale i ka ʻike ikaika loa."

Ua hana ʻo Dabhog i kahi ʻōpū puʻuwai ma ka makahiki 1
I kēlā manawa hoʻokuʻu ka pane i kahi album.

"Pono wau e puka i waho o ka incubator no 20 a 30 mau minuke a hana i nā nīnauele e hāpai i ka album.

“Pono wau e hoʻohālike aia wau i kahi kahi i ʻoluʻolu wau e hoʻokuʻu i nā mele pōhaku no ka leʻaleʻa. He papa hoʻokūkū holoʻokoʻa ia me kuʻu poʻo, "wahi a Neeson.

Ua ola ʻo Dabhog a ua hoʻokuʻu ʻia ʻo ia mai ka haukapila, ʻoiai ua hana ʻo ia i kahi ʻoki kino i ka makahiki o hoʻokahi e hoʻoponopono i kahi puka i kona puʻuwai.

Loaʻa ka hopena hohonu i nā ʻike ma ka ʻike a Neeson o ke ola a me kāna mele.

"I ka manawa e paʻa ai ka lepo a home ʻo Dabhog a hoʻomaka kona olakino e loli a hoʻomaha iki ke ola ua ʻike wau ʻaʻole wau ma kahi wahi e hiki ai iaʻu ke kākau maoli i ke ʻano o nā mele a mākou i hoʻolilo ai i ka he 10 mau makahiki i hala iho nei o ke kākau ʻana, "i ʻōlelo ʻo ia.

Ua hele ʻo ia i Nashville kahi i hana pū ai me nā mea haku mele a me nā mea hoʻokani ʻAmelika e hui pū i kahi album hou. "ʻO ka hopena he hōʻiliʻili maoli ia o nā mele i introspective, ikaika aʻoiaʻiʻo i hiki iā lākou ke lilo i ʻāpana o kahi papahana solo.

"He honua kaawale mai nā mea aʻu i hoʻohana ai i kaʻu hana i ka hana ʻana a hiki i kēlā manawa."

ʻO ke poʻo inoa o ka album solo a Neeson, White Feather, mai kahi hanana i ka wā o ka hāpai ʻana o kāna wahine
ʻO kekahi o nā mele, Broken Wing, he mea hoʻokupu iā Dabhog.

"He manawa kūpono kūpono ia e kamaʻilio e pili ana i Down syndrome a normalize Down maʻi maʻi, akā no ka hoʻolauleʻa ʻana hoʻi i kaʻu keiki kāne no ka mea ʻo ia ia," wahi a Neeson.

'Leloʻo ia makemakeʻo ia e hoʻopau i ke mele e hoʻoulu nei i kahi keiki me ke aʻo ʻana i ke kino kīnā he mau hanana kū hoʻokahi, akā "kū hoʻokahi ia i kahi ala nui a mana loa hoʻi."

Ua ʻōlelo ʻo Neeson ua kākau ʻo ia i ke mele e kōkua i nā mākua hou o nā keiki me Down Syndrome.

"Ke hoʻi nei wau i ka haukapila i kēlā me kēia manawa e haʻi ʻia iā mākou ua maʻi ʻo Dabhog Down Syndrome a manaʻo wau inā lohe wau i kēia mele a laila hiki iaʻu ke hōʻoluʻolu.

"Inā loaʻa kāu keiki i ka maʻi maʻi Down ʻaʻole ia ka ʻōlelo a kāu keiki. He kū hoʻokahi a pēpē hoʻi kāu pēpē e like me nā pēpē ʻē aʻe. ʻAʻole au i hui me kekahi kanaka e like me kaʻu keiki ʻo Dabhog.

"ʻO ka hauʻoli āna i lawe mai ai i loko o kā mākou ola kahi mea hiki ʻole iaʻu ke ʻike mua ke hopohopo wale mākou i kēlā me kēia lā e pili ana i kona olakino a lawe ola iā ia mai kēlā haukapila ola."

Loaʻa iā Neeson he chromosome 21 ma kona lima. ʻO ka maʻa maʻamau o Down syndrome ka trisomy 21, ke loaʻa ʻekolu kope o kēlā chromosome ma kahi o ʻelua
ʻO ke poʻo inoa o ka album, White Feather, he kuhikuhi i kahi hanana i ka wanaʻao o ko Louise hāpai ʻana me Dabhog.

Ma kahi o ʻekolu mau pule ua haʻi ʻia iā ia he hāpai hāpai ectopic, ke kanu ʻia kahi hua manu momona ma waho o ka kōpū, pinepine i ka paipu fallopian. No laila ʻaʻole hiki i ka hua manu ke hoʻomōhala i keiki pēpē a pono e hoʻopau ʻia ka hāpai ʻana ma muli o ke ola olakino o ka makuahine.

Ma hope o ka lawe ʻana iā Louise no ka ʻoki kino, ua ʻike nā kauka ʻaʻole ia he hāpai ectopic, akā ua ʻōlelo lākou e kali hou lākou i ʻelua mau pule ma mua o ka hiki ʻana iā lākou ke ʻimi i ka puʻuwai a hōʻoia inā e ola ana ka pēpē. .

ʻO ka pō ma mua o ka scanner, hele wāwae ʻo Neeson ma nā puʻu kokoke i kona kauhale o Newcastle, County Down.

"Ua hala ka nui o ka noiʻi ʻuhane. Ua ʻōlelo wau me ka leo nui: "Pono au i kahi hōʻailona". I kēlā manawa ua kū wau i make i kaʻu mau ala. "

Ua ʻike ʻo ia i kahi hulu keʻokeʻo ma nā kumulāʻau. "Ma ʻIlalani, he hulu keʻokeʻo ka mea e hōʻike ai i ke ola," wahi a Neeson.

I ka lā aʻe ua hōʻike ka scanner i kahi puʻuwai puʻuwai "gigantic".

Ua hoʻokuʻu aku ʻo Neeson band ka pane i nā album studio ʻeono
ʻElima mau makahiki ʻo Dabhog i kēia manawa a ua hoʻomaka ʻo ia i ke kula i Kepakemapa, kahi a Neeson i ʻōlelo ai ua loaʻa iā ia nā hoaaloha a ua loaʻa nā palapala hōʻoia e lilo i Pupil o ka Pule.

"ʻO ka hiki wale nō ke ʻike i kā mākou pēpē e ulu pono ana i kēlā ala a ke kamaʻilio nui a ke lilo nei i ola e hōʻoiaʻiʻo ai i ke ʻano a no ia e lawe mai i ka hauʻoli i loko o ko mākou ola kahi ʻike maikaʻi loa ia no mākou a mahalo mākou no kēlā, "wahi a Neeson.

He kaikaina ko Dabhog i kēia manawa, a ua lilo ʻo Neeson i ʻelele no ke aloha maʻi kīnā ʻo Mencap ma ʻAlani ʻIlani. Ua hele ʻo Dabhog i kahi kikowaena Mencap ma Belfast no ke aʻo loea a me ke kākoʻo kōkua mua.

"Ma mua o ka hāpai ʻana o kaʻu wahine me Dabhog, manaʻo wau ʻo kaʻu mea nui wale i ke ola ʻo wau iho ia a manaʻo wau ua lilo ia i mea emi iho ka pīhoihoi ke loaʻa kāu keiki," i ʻōlelo ʻo ia.

Ke nānā nei i ka 2014, ua hoʻohui ʻo ia: “Aia kekahi mau manawa i kou ola ke ʻike ʻole ʻoe pehea e lanakila ai i kēia mau mea keʻakeʻa, akā hana ʻoe.

"I kēlā me kēia manawa ke puka aku ʻoe i waho o ka ʻaoʻao ʻē aʻe he mana maoli o ka lanakila a ma laila mākou i kēia manawa."