ʻO ka minoʻaka kupaianaha o ke keiki hānau ʻia me ka lolo ma waho o ka iwi poʻo.

ʻO ka mea pōʻino, lohe pinepine mākou i nā keiki i hānau ʻia me nā maʻi kakaʻikahi, i kekahi manawa hiki ʻole ke hoʻōla ʻia, me ka pōkole loa o ke ola. ʻO kēia ka moʻolelo o kekahi o lākou, a bebe hānau ʻia me ka lolo ma waho o ka iwi poʻo.

He mea minamina i ka makua ke hāʻawi i ke ola a i ka manawa o ka hāpai ʻana, loaʻa i nā maʻi maʻi ʻaʻole e waiho i waho. ʻO nā manaʻolana ola pōkole, hoʻopaʻi ʻia nā mea ola e ʻakaʻaka a waiho i kahi hakahaka nui.

ʻO ke ola o Bentley Yoder

Bentley yoder Ua hānau ʻia ʻo ia i ka mahina ʻo Dekemaba 2015 me ka lolo ma waho o ke poʻo, e loaʻa ana i kahi maʻi maʻamau i kapa ʻia ʻo encephalocele.

kaencephalocele i loko o kahi kīnā kūloko o ka cranial vault, kahi a maningocele (ʻeke meninges, me ka wai wale nō i loko), a i ʻole a myelomeningocele (ʻeke meninges, me ka lolo o loko). ʻO ka wahi pinepine loa ʻo ia occipital, oiai kakaikahi ka wehe ana o ka encephalocele mamuama ka puka ihu. Ua wehewehe pū ʻia nā vertex encephaloceles.

Ma hope o ka hele ʻana mai i ka honua, ua hōʻike nā kauka i kahi ʻano weliweli maoli i nā mākua. Ua loaʻa i ke keiki liʻiliʻi ke kiʻi lapaʻau maoli, me ka liʻiliʻi loa o ke ola.

ʻAʻole i manaʻo ʻia, me nā pilikia a pau, ua ola ke keiki, i hoʻopuni ʻia e ka mālama a me ka nānā ʻana o kona ʻohana. I kēia lā ua loaʻa iā Bentley Nā makahiki 6, aia ma ka papa mua a haʻaheo nā mākua i kaʻana like i nā kiʻi mai kona ola ʻana ma kahi pūnaewele puni honua kaulana, Facebook.

Ma o ia mau kumu i aʻo ai mākou i nā hana ʻoki lolo like ʻole i loaʻa i ke keiki. ʻO kēia mau hana i hāʻawi iā Bentley i ka hiki ke ola lōʻihi. Hoʻomaka ka hana mua i 2021 a ua hana ʻia a hala ʻole me ka pilikia ʻole.

ʻO ka mea kupanaha a paʻi pololei i ka puʻuwai, ʻo ia ka mea kupanaha minoʻaka i paiia ma kona alo. ʻO ka minoʻaka o kahi keiki aloha i ke ola a hauʻoli ʻoiai nā mea āpau.