ʻO ka makuahine o kahi kaikamahine me ka maʻi maʻi ʻaʻole i manaʻo ʻia ke hōʻino ʻia ʻo ia a hoʻohenehene ʻia
ʻO kēia ka moʻolelo o kahi makuahine aloha i hoʻoponopono i ka hoʻokae ʻia mai kahi hui ʻaʻole hiki ke ʻae i ka hānau ʻana o nā keiki kūikawā like ʻole. Ua hānau kēia makuahine i hoʻokahi keiki me kahi maʻi maʻi maʻamau a mai ka hānau ʻana, i ka manawa hauʻoli loa, pono ʻo ia e alo i ka ʻano inaina o ka poʻe insensitive.
He makua no a keiki ʻokoʻa, inā he maʻi a he kīnā ʻole paha ʻoe, hiki ke lilo i mea ʻike loa paʻakikī a ʻehaʻeha. ʻO ka loaʻa ʻana o ka maʻi hiki ke hoʻoulu i ka haʻalulu, ke kaumaha, ka huhū a me ke ʻano o ke kōkua ʻole. ʻAʻole wale ka makua i ke alo me kēia pōʻino, akā pū kekahi manaʻo aloha ʻole kanaka, hiki ʻole ke ʻike i ke aloha.
Eliza he makuahine i makemake haʻi ʻO kāna moʻolelo, me ka puʻuwai ma ka lima, aneane like me ke kanaka lohi uwe no ke kokua. Mai ka hānau ʻana o kāna kaikamahine, ʻaʻohe ona ʻike i ka hōʻole, ka hoʻokae a me nā hiʻohiʻona ʻino. Ua lilo kona manawa hauʻoli i uē ʻeha.
Ua makemake ka wahine hāʻawi leo i kēlā mau makuahine a pau i manaʻo ʻia no ka mehameha wale nō no ko lākou hāpai ʻana i kahi ʻōpū kūpono ʻole, ʻaʻole i hāʻule i loko o ka stereotypes i manaʻo ʻia e ka lehulehu, hiki ke nānā wale i waho.
ʻO ka hānau ʻana o Bella, ka pēpē me Treacher Collins syndrome
ʻO Questa gravidanza no Eliza a me kāna kāne, ʻo ia ka hoʻokō ʻana o kahi moe aloha i kali lōʻihi ʻia a makemake ʻia. Ma mua o ka hānau ʻana o ka pēpē, ua noʻonoʻo ka male, noʻonoʻo i nā hiʻohiʻona somatic, nā mea like, i ka pōkole, ua hana lākou e like me ke kāne hauʻoli maʻamau e kali ana i ka manawa e apo i ka hua o kā lāua aloha.
Akā hoʻokahi mahina ma mua o ka hānau ʻana, ʻo Eliza wawahi i ka wai, ʻaʻole mākaukau ka pēpē e hānau ʻia, akā naʻe, ua hewa kekahi mea a pēlā aku Nā hola 12 a laila hānau ʻia ʻo Bella. ʻO ka pēpē kakahiaka nui, he pepeiao pio a me nā hiʻohiʻona somatic ʻokoʻa mai nā kūlana. ʻAʻohe mea o ka poʻe i hele mai i hoʻomaikaʻi iā ia, ʻo ke kāne hoʻi i kū mālie me ka makaʻu.
A laila haʻi aku nā kauka iā ia e pono i kāna Bella liʻiliʻi mālama kūikawā. Ma kahi i ʻike hewa ai nā mea a pau, ʻike ʻo ia i ke aloha, ʻo ke aloha nui loa i hiki iā ia ke ʻike.
Ma hope o nā kipa pau ʻole, ua ʻike ʻia ke kaikamahine liʻiliʻi ʻO Treacher Collins Syndrome, he maʻi hoʻoilina e pili ana i nā iwi a me nā ʻiʻo o ka maka a e alakaʻi iā ʻoe e hana i nā hana like ʻole.
Hana ʻo Eliza a me kāna kāne i ka mea maikaʻi loa e hāʻawi iā Bella liʻiliʻi ola maʻamau a hanohano, manaʻolana wale lākou e lohe ʻia kā lākou uē a lawelawe ʻia noe hoala i ka ike kanaka a kōkua i nā ʻohana āpau me kahi keiki kūikawā e loaʻa ke kākoʻo mai nā ʻoihana.