Kuve nemwana ane Down syndrome kwakachinja sei hupenyu hwedombo
Muimbi wekuIreland wekuDombo Cormac Neeson anoti kuve nemwana ane Down syndrome kwakachinja hupenyu hwake nenzira "inofadza uye yakanaka".
Muna 2014 Neeson akararama kurota kwedombo 'n' roll munzira dzakawanda. Chikwata chake, Iyo Mhinduro, chakange chatengesa mazana ezviuru zvemarekodhi uye akatenderera nyika neanofarira eThe Rolling Stones, The Who uye AC / DC.
Asi nyika yemuimbi yakazungunuswa kusvika mudzimai wake, Louise, paakabereka mwana akakurumidza kusvika mumasvondo makumi maviri nemanomwe chete.
"Yakanga iri nguva ine rima zvisinganzwisisike," anodaro Neeson.
Mwanakomana wavo, Dabhog, akazvarwa aine huremu hwe0,8 kg uye akatarisirwa zvakanyanya. Akaramba ari muchipatara muBelfast kwemwedzi mina inotevera.
"Kwenguva yakawanda yenguva iyoyo takanga tisina chokwadi zuva nezuva kana aizozvikwanisa," anowedzera Neeson.
Vhiki mbiri gare gare, vakatarisana nenhau dzekuti Dabhog aive neDown syndrome, iyo geni mamiriro ayo anowanzo kukanganisa kugona kwemunhu kudzidza.
"Icho chaive chimwe chinhu chakangowedzera kune chakanyanya kwazvo chiitiko."
Dabhog akavhiyiwa moyo panguva ye1 gore
Panguva iyoyo Mhinduro yakaburitsa dambarefu.
“Ndinofanira kubuda muiyo incubator kwemaminetsi makumi maviri kana makumi matatu ndoita mabvunzurudzo ekusimudzira dambarefu iri.
“Chaizvoizvo ndaifanirwa kunyepedzera kunge ndiri munzvimbo yandainzwa kusununguka kuburitsa rwiyo rwe 'rock' n 'roll kuitira mafaro. Yakanga iri kosi yakakwana yekurovera nemusoro wangu, ”anodaro Neeson.
Dabhog akapona uye akaburitswa muchipatara, kunyangwe aifanirwa kuvhiyiwa aine gore rimwe chete kuti agadzire buri mumoyo make.
Zvakaitika izvi zvakakanganisa chiratidzo chaNeson chehupenyu nemumhanzi wake.
“Pese paibuda guruva uye Dabhog aive pamba uye hutano hwake hwakatanga kuchinja uye hupenyu hwakadzikama zvishoma ndakaona kuti zvisizvo ndakanga ndisiri munzvimbo yandaigona kunyora mhando yemumhanzi yatakange tamboshandisa mukati makore gumi apfuura ndichinyora, ”anodaro.
Akaenda kuNashville kwaakashanda nevanyori vekuAmerican vanyori nevaimbi kuti vaise pamwechete dambarefu nyowani. "Mhedzisiro yacho yaive muunganidzwa wenziyo dzaive dzakanangana, dzakasimba uye dzakaperera zvekuti vaigona kungove chikamu chehurongwa hwega.
"Inyika iri kure nezvinhu zvandanga ndashandisa basa rangu kugadzira kusvika ipapo."
Musoro weAlbum's solo album, White Feather, inobva pachiitiko panguva yemimba yemukadzi wake
Imwe yenziyo, Broken Wing, mutero kuna Dabhog.
"Ndiwo mukana wakanaka kutaura nezve Down syndrome uye kugadzirisa chirwere cheDown's syndrome, asiwo kupemberera mwanakomana wangu nekuva zvaari," anodaro Neeson.
Anoti anoda kupfuudza rwiyo rwekuti kurera mwana ane hurema hwekudzidza kune rakasiyana dambudziko, asi "rakasarudzika munzira huru uye ine simba."
Neeson anoti akanyorawo rwiyo kubatsira vabereki vatsva vevana vane Down syndrome.
“Ndanga ndichidzokera kuchipatara pese patinoudzwa kuti Dabhog ane Down syndrome uye ndaifunga kuti ndikanzwa rwiyo urwu ndinogona kunyaradzwa narwo.
“Kana mwana wako aine Down syndrome handizvo zvinotsanangurwa nemwana wako. Mwana wako akasarudzika uye akashamisa sevamwe vacheche. Handisati ndambosangana nemunhu akaita semwanakomana wangu, Dabhog.
"Mufaro waanounza muhupenyu hwedu chimwe chinhu chandisingafungidzire apo isu taingove kushushikana zuva rega rega nezvehutano hwake uye nekumuburitsa muchipatara ichocho ari mupenyu."
Neeson ane chromosome 21 yakatemerwa nyoro paruoko rwake. Fomu yakajairika yeDown syndrome ndeye trisomy 21, kana paine makopi matatu echromosome iyoyo pane maviri
Musoro wealbum, White Feather, inoreva chiitiko chakatanga Louise ave nepamuviri naDabhog.
Anenge mavhiki matatu akaudzwa kuti yaive ectopic nhumbu, kana zai rakaiswa kunze kwechibereko, kazhinji mutopopu chubhu. Zai harigone kukura kuva mucheche uye nhumbu inofanira kumiswa nekuda kwenjodzi yaamai.
Mushure mekutora Louise kuti avhiyiwe, vanachiremba vakaona kuti yakanga isiri ectopic nhumbu, asi vakati vaizofanira kumirira mamwe mavhiki maviri vasati vakwanisa kuongorora kurova kwemoyo uye kuratidza kana mwana achiri mupenyu. .
Husiku husati hwaitwa scan, Neeson akafamba oga muzvikomo padyo neguta rekumusha kwake reNewcastle, County Down.
“Ongororo yakawanda yemweya yakaenderera mberi. Ndakati nenzwi guru: "Ndinoda chiratidzo". "Ipapo ndakamiswa kufa munzira dzangu."
Akanga aona munhenga chena mumiti. "MuIreland, minhenga chena inomiririra hupenyu," anodaro Neeson.
Zuva rakatevera scan rakaratidza "hombe" kurova kwemoyo.
Neeson bhendi Mhinduro yakaburitsa matanhatu studio maalbhamu
Dabhog ava nemakore mashanu uye akatanga chikoro munaGunyana, uko Neeson anoti akaita shamwari uye akahwina zvitupa zvekuve Mudzidzi weVhiki.
"Kuti tikwanise kuona mwana wedu achikura nenzira iyoyo uye tichikurukurirana uye kuva munhu anosimbisa hupenyu uye kuti aunze mufaro wakanyanya muhupenyu hwedu chiitiko chakanakisa kwatiri uye isu tinotenda izvo, ”anodaro Neeson.
Dabhog parizvino ane munin'ina uye Neeson ave mumiriri wesangano rekuremara rekudzidza Mencap muNorthern Ireland. Dabhog akaenda kuMencap centre muBelfast kune nyanzvi yekudzidza uye kutsigirwa kwekupindira kwekutanga
"Mukadzi wangu asati abata nhumbu yaDabhog, ndinofunga zvandaingotarisana nazvo muhupenyu zvaive zvangu uye ndinofunga zvinova zvishoma zvine udyire kana uine mwana," anodaro.
Achitarisa kumashure muna 2014, anowedzera kuti: “Pane nguva muhupenyu hwako yausingazive kuti ungakunda sei zvipingaidzo izvi, asi unozviziva.
"Pese paunobuda kunze uko kune pfungwa chaiyo yekukunda uye ndipo patiri izvozvi."