UDaniel Berna, ophethwe i-ALS wahlupheka kakhulu, unquma ukufa ngesizotha
Namuhla sibhekene nesihloko okuxoxwe ngaso kakhulu, ukukhetha okunzima. Sikhuluma ngowesilisa owanquma ukuzibulala ngokuphendukela kuye i-palliative sedation ejulile.
I-deep palliative sedation iwuhlobo lwe ukwelashwa kwe-palliative esetshenziselwa ukuhlinzeka ngokukhululeka kobuhlungu kanye nokukhulula ukukhathazeka ezigulini ezigulela ukufa. Kuyi-a izidakamizwa elawulwa ngomjovo womjovo noma ngomlomo futhi engase ibe nemiphumela yokudambisa, yokudambisa izinhlungu kanye ne-anticonvulsant.
Lokhu kwelashwa kwasekuqaleni yakhelwe njengendlela yokunciphisa ubuhlungu ngesikhathi sesigaba sokugcina sokugula okungapheli, kodwa futhi muva nje isetshenziswe njengethuluzi elingokwengqondo nelomoya ukunikeza impumuzo nenduduzo kwabagulela ukufa.
UDaniel Berna unquma ukufa ngesizotha
Le yindaba ka UDaniel Bern, indoda eyayiphethwe i-ALS, eyafa NgoMashi 9 eSesto Fiorentino. U-Daniele wahlupheka kakhulu futhi wanquma ukuqeda "okungaphili" kwakhe, njengoba ayekubiza kanjalo, ephazamisa ukushaywa komoya okuphoqelekile futhi wasebenzisa i-palliative sedation ejulile.
Uyibuyisela lapho Repubblica, iphephandaba indoda eyayivame ukuphendukela kulo ilandisa ngempi yayo ngo-2021, ukuze ithole leli phephandaba i-physiotherapy ekhaya. Indoda, imenenja emkhakheni wokufakelwa kwamazinyo, yayithole ngoJuni 2020 ukuthi yayiphethwe yisifo I-Amyotrophic lateral sclerosis, okwasheshe kwamphuca ikhono lakhe lokukhuluma nokunyakaza ngokuzimela. Ngemva i-tracheotomia, le ndoda yayinqume ukuphazamisa ukwelashwa kokungenisa umoya futhi yasebenzisa ukunakekelwa kwesiguli. U-Daniele ubelokhu ecabanga ukuthi akukho sizathu sokuphila impilo engenaso isithunzi.
Endabeni ye-ALS, umthetho 217/2019 ikuvumela ukuthi ukhethe ukuthi uhlale unamathele kumshini wokungenisa umoya noma uyeke ukungena ngenkani ngokwenqaba ukwelashwa njengoba kuhlinzekwe esigabeni 32 soMthethosisekelo. Akukona mayelana ukubulawa kwesiguli kodwa ulele futhi umise ukwelashwa okubalulekile kwesiguli.