Daniel Berna, yemwe akudwala ALS anavutika kwambiri, akuganiza kuti afe ndi ulemu

Lero tikuyang'anizana ndi mutu wokambidwa kwambiri, chisankho chovuta. Tikunena za munthu wina amene anaganiza zongodzipha kuya palliative sedation.

Deep palliative sedation ndi mtundu wa chithandizo chamankhwala zomwe zimagwiritsidwa ntchito popereka mpumulo komanso kuchepetsa nkhawa kwa odwala omwe ali ndi matenda aakulu. Ndi a mankhwala yomwe imayendetsedwa ndi jekeseni wa mtsempha kapena pakamwa komanso yomwe imatha kukhala ndi sedative, analgesic ndi anticonvulsant zotsatira.

Mankhwalawa anali poyambirira zopangidwa monga njira yothetsera ululu panthawi yomaliza ya matenda osachiritsika, komanso posachedwapa yagwiritsidwa ntchito ngati chida chamaganizo ndi chauzimu kuti apereke mpumulo ndi chitonthozo kwa odwala omwe akudwala matenda aakulu.

Daniele Berna asankha kufa ndi ulemu

Iyi ndi nkhani ya Daniel Bern, munthu wodwala ALS, yemwe anamwalira March 9 ku Sesto Fiorentino. Daniele anavutika kwambiri ndipo adaganiza zothetsa "kusakhala ndi moyo" kwake, monga momwe adatchulira, kusokoneza mpweya wokakamiza komanso kugwiritsa ntchito mankhwala osokoneza bongo.

Iye akuchibweretsa icho kumeneko Repubblica, nyuzipepala yomwe bamboyo nthawi zambiri amapita kukafotokoza za nkhondo yake mu 2021, kuti apeze physiotherapy kunyumba. Bamboyo, manejala pagawo loyika mano, adazindikira mu June 2020 kuti akudwala Amyotrophic lateral sclerosis, zomwe posakhalitsa zinamulepheretsa kulankhula ndi kuyenda paokha. Pambuyo alireza, bamboyo anaganiza zosokoneza chithandizo cha mpweya wabwino ndi kuyamba chithandizo chamankhwala. Daniele wakhala akuganiza kuti palibe chifukwa chokhala ndi moyo wopanda ulemu.

Pankhani ya ALS, lamulo 217/2019 kumakupatsani mwayi wosankha kukhalabe wolumikizidwa ndi makina olowera mpweya kapena kusiya kulowetsa mpweya mokakamiza pokana chithandizo chamankhwala monga momwe zanenera ndime 32 ya Constitution. Si za kumaliza koma kugona ndikuimitsa chithandizo chofunikira kwa wodwalayo.