UBergamo, utata unikela ngomphunga ukuze asindise unyana wakhe
Namhlanje siza kukuxelela ibali lomncinci mario (igama eliyintsomi), umntwana ogulayo, wachacha ngenxa yomnikelo wenxalenye yomphunga wakhe nguyise. SiseBergamo. Inkwenkwe eneminyaka emi-5 ubudala ifika e-Italiya ngo-2018 kunye nomama wayo, ukuze bajoyine uyise.
Emva konyaka efikile, ngenxa yokugula konyana wabo rhoqo, abazali bagqiba kwelokuba bamsa esibhedlele Meyer waseBergamo ukwenzela ulawulo. Emva kothotho lweetshekhi, ingxelo ifumene ithalassemia, okanye i-anemia yeMeditera, isifo segazi.
Uxilongo lwalandelwa Iminyaka emi-2 yotofelo-gazi ukuqhubeka, kude kube ngu-2021, unyaka apho i ukutshintshwa komongo wethambo. Nangona luphumelele utyando, ngenxa yomnikelo womongo nguyise, umntwana uchaphazeleka sesi sifo uxhulumaniso ngokuchasene nomninimzi, ingxaki enokuthi ichaphazele izigulane ezithatha i-allogeneic transplantation.
Olu hlobo lwesifo kunye nokusetyenziswa kweziyobisi apho isigulane siphantsi komonakalo kakhulu i ipolmoni ukuthintela usana ukuba luziphefumlele ngokwalo.
Ufakelo lwemiphunga
Ngeli xesha, ekuphela kwethemba likaMario lokusinda yayikukufakelwa imiphunga. Ekwindla ngo-2022, iingcali zesibhedlele saseMeyer ziqhagamshelane ne UPopu John XXIII waseBergamo ukubeka umntwana kuluhlu lofakelo. Ngomhla we-1 kaDisemba, uMario omncinci ungena esibhedlele kwaye ungeniswe kwiwadi yabantwana ukuba aqhube yonke into uphenyo.
Ngelo xesha, oogqirha bathetha nabazali ngenzuzo enkulu eya kuziswa kukutshintshwa kwelungu kumntwana. uphiwe ngutata, osele enikele ngomongo yaye ngoko amajoni akhe omzimba, akanakuba semngciphekweni wokwaliwa.
Olu hlobo lokungenelela lwalungekho ayizange yenziwe eItali kwaye yayinemizekelo embalwa kakhulu eYurophu. Kodwa uyise kaMario wayezimisele ukwenza nantoni na ukuze asindise unyana wakhe 17 Januwari 2023 uqhaqho-fakelo lwenziwa. Lonke inkqubo kwigumbi lotyando yaqhubeka Iiyure ezingama-11.
Ngokukhawuleza emva kokuhlinzwa umntwana uhlala esibhedlele iiveki ezimbini esibhedlele Ukhathalelo lwabantwana olunzulu. Kwiintsuku ezisibhozo emva kokutshintshwa kuka-Mario ufikelele kwi-ukuzimela ngokuphefumla kwaye umoya ohlaselayo unqunyanyisiwe. Uyise wakwazi ukumbona unyana wakhe kwakhona emva kwe-approx Ivekiemva kokuchacha kuqhaqho. Emva koko inyanga emva kotyando, omncinci ushiya esibhedlele ekulungele ukuphila ubomi bakhe obutsha.