Wazalwa enesifo esinqabileyo nesingaziwayo semfuza kodwa akazange ayeke ukukholelwa kuncedo lukaThixo.
Ngasekupheleni kweminyaka engama-90, e-Illinois, eU.SA. UMary noBrad Kish sisibini esincinci sabazali abalindele ngexhala nangovuyo ukuzalwa kwabo umntwana. Ukukhulelwa kwaqhubeka ngaphandle kwengxaki kodwa ngomhla wokuzalwa, xa umntwana ezalwa, oogqirha baqaphela ngokukhawuleza ukuba kukho into engalunganga kuye.
Michelle wayenobuso obungqukuva, impumlo ethe thsuphe kwaye ekhathazwa kukuqothuka kweenwele. Emva kohlolisiso olucokisekileyo oogqirha bafikelela kwisigqibo sokuba uMichelle wayegula I-Hallerman-Streiff syndrome.
Ukufunyanwa kweHallermann-Streiff Syndrome
Le syndrome yenye isifo esinqabileyo sofuzo echaphazela ukakayi, ubuso kunye namehlo. Ibonakala ngendibaniselwano ye-craniofacial anomalies, ukukhula ngokukhawuleza, ukuzalwa kwamehlo, i-muscular hypotonia kunye nezinye iziphazamiso zemfuzo. Lilonke, kukho iimpawu ze-28 ezibonisa yena kunye noMichelle waba ne-26 kubo.
Al Isibhedlele seSikhumbuzo saBantwana, apho uMichelle weza khona emhlabeni, akukho mntu wakha wambona umntu ogula sesi sifo. Akuba uMary evile ngesi sigulo, uphelelwa lithemba. Wayengazi ukuba ulindelwe yintoni kwaye engazi ukuba makayenze njani le meko.
Ukongeza kwi-syndrome, uMichelle omncinci ukwanengxaki dwarfism. Ezi meko zazithetha ukuba uya kufuna ukhathalelo olukhulu kunye noncedo, ukusuka kwisitulo esinamavili sombane, ukuya kwisixhobo sokuncedisa ukuva, kumatshini wokuphefumla kunye nezinto ezibonwayo.
Kodwa abazali okanye uMichelle omncinane babengenanjongo yokunikezela. Bafumana iindlela zokusingatha le meko yaye namhlanje uMichelle unazo 20 iminyaka ungumzi osempilweni wolonwabo, uthanda ukwabelana ngexesha kunye nodade wabo kunye namaphupha omfana.
Nangona ubude bakhe kunye nemeko yakhe, uphila njengomntu oqhelekileyo, unengqondo, uhlakaniphile kwaye akakhathali ukuba uphazanyiswe ngumntwana. UMichelle ubomi bothando yaye kusisifundo kubo bonke abo baqhawuka ngomqobo omncinane okanye abacinga ukuba ukuphila kunikelwa.