Usana oluneeveki ezimbini luphila kwi-XNUMX lomhlaza. Kubonakala ngathi ngummangaliso, kodwa yinyani.
Ngaphandle koko intombazana incinci kakhulu ngoko nangoko iqala idabi elinzima lokusinda.
Xa isibini sithatha isigqibo sokuba nabantwana kusoloko kungumzuzu omnandi kakhulu kwaye siziva sivuya kwaye sizele umdla. Sihlala sizaliswe luvuyo kuba sonke sijonge phambili ekufikeni komntwana oyintombazana/ oyinkwenkwe.
Ukulindela komntwana ongekazalwa ngamanye amaxesha kudala uxinezeleko kuba sonke sinethemba lokuqala ukuba uphilile.
Eli libali lentombazana encinci, uRachael Young, ngelishwa wazalwa enesifo esinqabileyo, i-infantile myofibromatosis. Umama uKate, oneminyaka engama-37, kunye notata uSimon, 39, ngokuqinisekileyo bebengalindelanga ukuba intombi yabo esanda kuzalwa ifunyanwe inesifo esinjalo.
Ezi ndaba zikhutshwe yiBritish tabloid Mirror kwaye kudliwanondlebe olunikwe ngabazali, umama uKate uxela ukuba ukukhulelwa kwakuqhelekile kwaye akukho nto yayifanekisela i-epilogue enjalo. Esi sifo sichaphazela umntwana ngeyona ndlela inzima kakhulu, ngaphezu kwekhulu (i-benign) yamathumba ayanda ngaphakathi kumzimba omncinci kaRachael. Izihlunu, amathambo, ulusu, amalungu amaninzi kwaye ngelishwa nentliziyo yakhe encinci iyachaphazeleka.
Intombazana yayingenathemba kangako, oogqirha babexelele abazali bayo ukuba balungiselele eyona nto imbi. Ngethamsanqa, la mathumba ayengengomhlaza ngokwendalo kodwa ngenxa yobuninzi nobukhulu bawo, ayesabeka ubomi bomntwana emngciphekweni. Oogqirha bagqiba kwelokuba bamfake kulingo lonyango lwechemotherapy, izihlandlo ezingaphezu kwewaka apho uRachael wondliwa ngombhobho waza wosulelwa zizifo ezahlukahlukeneyo.
Emva kweenyanga ezili-18 ezinzima kakhulu, apho intombazana yabonisa yonke isibindi sayo, i-tumors iyancipha ide iphele, umphumo omangalisayo, ummangaliso oyinyaniso. Kwanoogqirha babemangalisiwe njengoko babengazange bayibone imeko enjalo kwiminyaka engama-40.
Kulonwabo lukamama notata, uRachael ufika ekhaya kwaye ekugqibeleni umnakwabo omncinci uHenry unokumgona. Umama uKate uthi:
Xa kwiintsuku nje ezimbalwa emva kokuba ezelwe, saxelelwa ukuba wayenamathumba angaphezu kwekhulu, sasicinga ukuba sinokujamelana nekamva ngaphandle kwakhe. Kodwa ngoku sinikwe ithemba elikhulu. Eli themba linegama likaRakeli.